Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation
نویسندگان
چکیده
منابع مشابه
Results of a transparent expert consultation on patient and public involvement in palliative care research
BACKGROUND Support and evidence for patient, unpaid caregiver and public involvement in research (user involvement) are growing. Consensus on how best to involve users in palliative care research is lacking. AIM To determine an optimal user-involvement model for palliative care research. DESIGN We hosted a consultation workshop using expert presentations, discussion and nominal group techni...
متن کاملQualitative Research in Palliative Care
367 Art Frank, reflecting on his experience of serious illness, writes " Care begins when difference is recognised. There is no 'right thing to say to a cancer patient,' because the 'cancer patient' as a generic entity does not exist. " [1] This insight underpins the contribution of qualitative research to health care and to other spheres of social inquiry. This contribution derives from the in...
متن کاملPatient and public involvement in emergency care research.
Patients participate in emergency care research and are the intended beneficiaries of research findings. The public provide substantial funding for research through taxation and charitable donations. If we do research to benefit patients and the public are funding the research, then patients and the public should be involved in the planning, prioritisation, design, conduct and oversight of rese...
متن کامل022 Pp: Research Design Boundaries for Qualitative Research, Stakeholder and Patient and Public Involvement, and Why They Matter
J Keenan, F Poland, P Wilson, E Mathie,* J Boote, A Varley, H Wythe, A Wellings, P Vicary, M Cowe, D Munday, A Howe. School of Health Sciences, University of East Anglia, UK; Centre for Health Services Studies, University of Kent, UK; CRIPACC (Centre for Research in Primary and Community Care) University of Hertfordshire, UK; Public & Patient Involvement in Research (PPIRes), Norfolk & Suffolk ...
متن کاملPatient involvement in clinical research: a qualitative evaluation of impact
Context The RESTORE programme comprises a randomised controlled trial, three pilot trials, a cohort study, qualitative studies and systematic reviews. Since 2010, the patient panel (PEP-R), has inputted into RESTORE. Seventeen patients have been involved in total, 8 were recruited at the time of the evaluation. Through facilitated group sessions, PEP-R provides input into refinement of patient ...
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ژورنال
عنوان ژورنال: Palliative Medicine
سال: 2020
ISSN: 0269-2163,1477-030X
DOI: 10.1177/0269216320956819